Golf Tournament For Butterfly Skin Disease At Aloha
News date: Sunday, 11th of July, 2004
€30.000 was raised at the golf competition held on the Aloha Golf Course, organised by the Asociación de Epidermolisis Bullosa de España, an association supporting children and adults with ‘butterfly disease,’ a skin condition in which skin is so sensitive, it sheds at the slightest touch, somewhat like a butterfly’s wings. The Association was delighted by the huge turnout and after the competition, guests partied the night away with dinner, an awards ceremony and a lively musical concert held at the Golf Club. For more information, contact Evanina de Morcillo Makow of the Asociación de Epidermolisis Bullosa de España on Tel: 952 816 434.
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